*** My friend Hannah. My friend Hannah is my sister in laws sister. My friend Hannah loves the same music as me. My friend Hannah is one of the bonus sister in laws I got, when my brother married Hannah’s sister. My friend Hannah, is my sister. My friend Hannah has MS & Parkinson’s -... Continue Reading →
‘In out, in out, shake it all about…’
About sums up my working life from about a year or so after my MS diagnosis, with a stint at College and University thrown in there. My life went from 100 to 0 overnight it seems, but this post isn’t about my paid working life, the opposite – my volunteering life. *** When restrictions were... Continue Reading →
‘My mind won’t work if my spine don’t jerk…’
What? Eh? Oh, it’s on the tip of my tongue! Here is your £1.40 change from the £10 that was given for your food shop…WHAT ON EARTH IS THIS COMPLEX MATHEMATICAL PROBLEM THAT YOU ARE THROWING AT ME?! My brain sees £10 divided by the 5 items that I have purchased, round anything over 80p... Continue Reading →
Nothing to lose but your head…’
Wednesday February 13th 2013 . The day before my 25th birthday. ‘You have Multiple Sclerosis’. I was asked the other day how long it took to accept my diagnosis, and my answer? ‘right now. This very moment, after 8 years’. I say that because it wasn’t until that moment that I was able to answer... Continue Reading →
I walk the places I used to scoot…
I have been rather quiet on here for the past couple months. I have needed to take a life break with everything to concentrate on my health following me starting a new medication, ‘Ropinirole’, during lockdown 2.0 (Nov). For those of you who aren’t aware, alongside MS I also have an underactive Thyroid which resulted as... Continue Reading →
Artificial Intelligence with Brains. The possibilities…
This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
Make sure it ends with you still living…
What exactly is the definition of someone living their life? Everyone has different interpretations of it, and this is something that I have come to realise as I get older. Even at 32 I look at the life of my 20s of what I deemed the definition of this being, and whilst I look at... Continue Reading →
So I dive straight back in the ocean…
When I was younger I absolutely loved swimming, with my costume having all of the badges obtained stitched to it and, much to my sisters dismay, all of my certificates pinned on the fridge. I haven’t swam since I was about 12…that kind of went out of the window when I went to upper school,... Continue Reading →
When I’ve got the music, I’ve got a place to go…
‘My Daddy was a bank robber, but he never hurt nobody, he just loved to live that way, and he loved to steal your money…’ It was around 1996 and my Dad was playing ‘The Story of The Clash’ in the car, ‘I Fought the Law’, and ‘Should I Stay or should I go’ was... Continue Reading →
21st Century Breakdown…
Vehicles breakdown but being a non-driver, I’d never experienced this trauma… UNTIL RECENTLY! I finally have a breakdown story with my scooter guys… buckle up. Going my merry little way along a path I take regularly, and I was greeted with some recently added grit. Now this grit wasn’t a thin layer (as initially thought... Continue Reading →