This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
The drugs don’t work, they just make you worse…
OK they do for many, but not for me it seems. No this isn’t a woes me, but after 3 different treatments in it just becomes much like that Hillary Clinton meme if you’ve seen it, where you just walk (or shuffle), chuckle to yourself and you throw your hands in the air. Come on... Continue Reading →
I’m not growing up, I’m just burning out…
We’ve all been there at some point, go about our daily life in whatever it consists of (work, parenting, volunteering, caring for someone/yourself, leisure activities, socialising…), but if you’re not careful too much of one, or many things, can eventually get on top of you and then BAM out of nowhere the burnout happens. Your... Continue Reading →
They see me rollin’…
Hannah has wheels. Hannah has a horn. Hannah has front and rear suspension, and she is coming for you at 4 mph. I wouldn’t say that the purchase of my mobility scooter has been 7 years in the making, far from it, but definitely the last 2 or so. The absolute reluctance of owning... Continue Reading →
Hello darkness my old friend…
13th February 2013 frames the before and after of my life. It’s impossible to get through grief that hasn’t happened yet as MS is a constant moving target. So with that, almost 7 years diagnosed and numerous ‘minor’ relapses (I say minor in that I can still function with my life for the best part... Continue Reading →