What? Eh? Oh, it’s on the tip of my tongue! Here is your £1.40 change from the £10 that was given for your food shop…WHAT ON EARTH IS THIS COMPLEX MATHEMATICAL PROBLEM THAT YOU ARE THROWING AT ME?! My brain sees £10 divided by the 5 items that I have purchased, round anything over 80p... Continue Reading →
I have been rather quiet on here for the past couple months. I have needed to take a life break with everything to concentrate on my health following me starting a new medication, ‘Ropinirole’, during lockdown 2.0 (Nov). For those of you who aren’t aware, alongside MS I also have an underactive Thyroid which resulted as... Continue Reading →
This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
‘My Daddy was a bank robber, but he never hurt nobody, he just loved to live that way, and he loved to steal your money…’ It was around 1996 and my Dad was playing ‘The Story of The Clash’ in the car, ‘I Fought the Law’, and ‘Should I Stay or should I go’ was... Continue Reading →
There are many mornings when I wake up, shuffle into the bathroom resembling nothing short of John Wayne, one eye closed in an attempt to overcome the double vision, sit there on the loo spaced out with exhaustion despite getting a good 8 hours sleep, and then bumping back and forth between the walls because... Continue Reading →
We’ve all been there at some point, go about our daily life in whatever it consists of (work, parenting, volunteering, caring for someone/yourself, leisure activities, socialising…), but if you’re not careful too much of one, or many things, can eventually get on top of you and then BAM out of nowhere the burnout happens. Your... Continue Reading →
Derived from my bout of optic neuritis from the relapse that lead to my diagnosis over 7 years ago; my eyes have never been able to fully recover, and the lasting damage? Double vision. Double vision (Diplopia) is usually one of the first MS symptoms many people encounter, and if it isn’t, then the... Continue Reading →
Hannah has wheels. Hannah has a horn. Hannah has front and rear suspension, and she is coming for you at 4 mph. I wouldn’t say that the purchase of my mobility scooter has been 7 years in the making, far from it, but definitely the last 2 or so. The absolute reluctance of owning... Continue Reading →
13th February 2013 frames the before and after of my life. It’s impossible to get through grief that hasn’t happened yet as MS is a constant moving target. So with that, almost 7 years diagnosed and numerous ‘minor’ relapses (I say minor in that I can still function with my life for the best part... Continue Reading →
So, many people see and hear the effects Multiple Sclerosis has on me, but why? What is causing me to drag my feet? Go dizzy? Constant pins and needles?Numbness/Paralysis? Fatigue? Double vision, to name but a few? To understand MS, it helps to understand how the central nervous system works. MS is believed to be... Continue Reading →
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