I have been rather quiet on here for the past couple months. I have needed to take a life break with everything to concentrate on my health following me starting a new medication, ‘Ropinirole’, during lockdown 2.0 (Nov). For those of you who aren’t aware, alongside MS I also have an underactive Thyroid which resulted as... Continue Reading →
This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
OK they do for many, but not for me it seems. No this isn’t a woes me, but after 3 different treatments in it just becomes much like that Hillary Clinton meme if you’ve seen it, where you just walk (or shuffle), chuckle to yourself and you throw your hands in the air. Come on... Continue Reading →
We’ve all been there at some point, go about our daily life in whatever it consists of (work, parenting, volunteering, caring for someone/yourself, leisure activities, socialising…), but if you’re not careful too much of one, or many things, can eventually get on top of you and then BAM out of nowhere the burnout happens. Your... Continue Reading →
13th February 2013 frames the before and after of my life. It’s impossible to get through grief that hasn’t happened yet as MS is a constant moving target. So with that, almost 7 years diagnosed and numerous ‘minor’ relapses (I say minor in that I can still function with my life for the best part... Continue Reading →
It was like being diagnosed all.over.again. Early March this year there I was again, hobbling into neurology, for what had started to become a monthly visit for one reason or another. Only now, I was heavily reliant on 2 crutches, in the space of a year I had gone from nothing, to a walking to... Continue Reading →
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